DES Diethylstilbestrol reviews

Your reviews matter to us – Thank you to all those who took the time to share their feedback about “Journal of a DES Daughter”.

A friend recently asked me a question that I often asked myself before my husband and I started on our “DES activism” journey: is it worth the time, efforts and dedication? The answer is simple: YES! Why? Just read these reviews / testimonials by people affected by the DES drug tragedy in one way or another. We are so grateful to all those who took the time to write a review about our website and we are thrilled that people find my “Journal of a DES Daughter” informative and useful. Your kind words of support keep us motivated. But before you start reading you may wonder what Alexa is…

Selection of Reviews left by DES-exposed individuals

DES – what we should know

I am mostly moved by the reality that there are people unaware of their exposure and the potential adverse health effects of diethylstilbestrol. Many don’t make the link between DES exposure and the health problems they are facing and sometimes even doctors don’t make that link either. Wouldn’t you want to know?
by Nate – Aug 07, 2012

My Mom took DES, what did it do to my Sister?

I try to visit from time to time because my Mom took DES to not lose my sister when she was pregnant. I didn’t even know it until my sister told me. I was only 7 when Mom was pregnant and as a child you just want your Mom to be okay and the baby to be alright. My sister has had many health issues, her lupus may be related to this, no one really knows, but she has it in remission right now. I am angry that the patients were given a drug that could cause so many problems for the children and their children. I learn more from this site each time I stop by. Keeping up with the latest research and the lawsuits is unbelievable hard, but this site does it so well and in easy to understand language. What we don’t know is if my Mom took DES with all of us? Each of us has health issues that are very unusual, and it makes me wonder because she did have two miscarriages before she had us. She passed from Dementia, so we will never know.
by Michelle – Jul 28, 2012

Wonderful informative Site

The site is very informative on the issue of a drug being administered to pregnant mothers which causes all sorts of problems. When I found out it was put in milk and being a Londoner I was forced to drink the milk as part of the school program, I am disgusted. This issue needs so much attention and unfortunately it receives so little.
by Barry – Jul 25, 2012

Did your Mother take DES? It could be causing you Problems now

and one way to find out is to check out this site. I had not known that my mother took DES when she was pregnant. She decided to discontinue it and had very limited exposure. Nevertheless, my jaw dropped when I read the list of things that are common to DES daughters, since I had experienced four or five of them. Great information!
by Susan – Oct 15, 2011

The Heartbreak of DES

As someone who has first hand experience with the side effects of DES, I found this blog to be a wealth of information about the drug and its use. The fact is has such lingering effects we may not even know about yet, is disturbing at best. The blog’s writer effectively combines medical research and data with her own personal journey as a DES daughter and mother, who is concerned about the yet unknown effects this drug may have on her own precious daughters and their children. The travesty against woman and men of mothers who were given this drug, as well as their future children, is something the writer communicates with passion and compassion.
by Paula – Sep 03, 2011

When I started writing my “Journal of a DES Daughter” a year and half ago I never thought I would be able to reach out to so many people – not only to victims of the DES drug scandal interested in DES health issues but also to people who had never heard about what is often referred to as the “Silent Thalidomide“. Thank you for your continued support. Your reviews mean a lot to us.

1000 Thanks to our 1000 Facebook Fans !

June 21st 2012 marks a Milestone in our efforts to raise awareness of the DES drug scandal and tragedy! 1000 Fans of “Journal of a DES Daughter” have joined us on Facebook to support our work and further help spread the word about the devastating impacts of this drug. My heartfelt thanks goes out to each and everyone of you for your continued support and interest in the DES cause! Thank you 🙂

Please find a list of Facebook groups and pages providing updates about the Diethylstilbestrol related issues as well as support for DES victims.

Spread the Word

Diethylstilbestrol, Journal of a DES Daughter on Facebook image
Thank you for sharing our page !

NEW: YouTube DiEthylStilboestrol’s Channel

In a bid to even further raise awareness about the DES issues, and help you find more (easily and/or faster) DES videos, we’ve created a new DES YouTube page.

YouTube diethylstilboestrol's channel image
NEW: find your DES Videos on YouTube DiEthylStilboestrol’s Channel

YouTube is an online video management and sharing application. Its primary goals are to help people make videos available to those who matter to them, and to enable new ways of organizing short films. It offers the perfect platform to share videos from around the world.

Playlist: DES Videos in English

YouTube DES Videos in English language playlist image
Find DES videos in English language re-grouped here

 

  • Easily find your DES videos in English language.
  • Original films (with original title, description & content) from five different YouTube users have been re-grouped here.
  • Diethylstilbestrol, Journal of a DES Daughter is NEITHER responsible for any of the content published, NOR trying to misguide web surfers on who the real video makers/owners are; their name being clearly mentionned.
  • Please contact us if you have other links or videos to share.
  • If you already have a YouTube account, click on Subscribe to be notified when new content is being added to this channel .

Playlist: DES Vidéos en français

YouTube DES Videos in French language playlist image
Touvez des vidéos en langue française sur le Distilbène® ici

 

  • Trouvez facilement vos vidéos en langue française sur le Distilbène®.
  • Les films originaux (inclus titres, descriptifs et contenu originels) de six utilisateurs YouTube différents ont été regroupés.
  • Le Blog Diethylstilbestrol, Journal of a DES Daughter n’est ni responsable du contenu publié, ni susceptible de vous induire en erreur sur l’identité des véritables réalisateurs des films; leur noms étant mentionnés.
  • Contactez-nous si vous avez d’autres liens ou vidéos à partager.
  • Si vous possédez un compte YouTube, cliquez sur S’abonner pour recevoir une notification si une vidéo supplémentaire est mise en ligne .

Join us:

We would like to invite all DES support groups and activists to collaborate to this project by contributing films to the new DiEthylStilboestrol’s YouTube Channel created and administered by Diethylstilbestrol, Journal of a DES Daughter. If you haven’t done it yet, you can also:

Help us break the wall of silence around the DES issues by joining these social networks and encouraging your friends to do the same.

NEW & FREE: DES Awareness Toolbar

As a BIG THANK YOU; because our Diethylstilbestrol Blog visitors as well as our facebook page Fans are increasing steadily, we have created a FREE new toolbar.
This completely unique toolbar should give you an easier access to all your favourite DES blogs & news, your facebook info, tweets and possibly eMails.

DES Awareness Toolbar Download:

Please click onto DES Awareness toolbar free download.
Follow the instructions and it will install in seconds. Contact us if you need any assistance.

Diethylstilbestrol DES awareness toolbar image
Download the FREE and handy DES Awareness Toolbar

 

DES Awareness Toolbar Features:

From left to right:

  • Link button to Diethylstilbestrol home page
  • Link button to DES Info blog
  • Link button to DES Action Australia NSW blog
  • Menulinks button with drop down links to
    • All DES Action groups
    • Flickr Diethylstilbestrol photo gallery
    • Search
    • Del.icio.us bookmarks
  • RSS News links button => drop down links to DES posts
  • Link button to Diethylstilbestrol facebook page
  • Your personal Facebook link button
  • Link button to Diethylstilbestrol twitter page
  • Twitter links button => drop down links to DES tweets
  • Your personal Twitter link button
  • GMail button going to YOUR account
  • Options button

Once again, many thanks for your support.
We hope that you will find the DES Awareness toolbar useful as much as we do.

Flickr DES Diethylstilbestrol’s Photostream

In a bid to further raise awareness about the DES issues and reach a wider audience, we’ve created a new DES flickr page. It includes photos of DES events such as the recent DES Symposium at Massachussets General Hospital in Boston, DES adverts, pills, tablets and bottles, DES brochures and newsletters, DES graphs, press cuttings and much more.

flickr DES Diethylstilbestrol's Photostream image
NEW: flickr DES Diethylstilbestrol's Photostream

flick is an online photo management and sharing application. Its primary goals are to help people make photographs available to those who matter to them, and to enable new ways of organizing images. It offers the perfect platform to share photos from around the world.
But flick is one of those ideas that depends on interconnectivity.

We would like to invite all DES support groups and activists to collaborate to this project by contributing photos to the new Diethylstilbestrol flickr page. By sharing as many images as possible we can create a comprehensive source of DES related photos and really show how far and wide the DES issues are affecting people’s lives.

By “Geotaging” the DES photos we can highlight on the DES Diethylstilbestrol Map where the DES community is taking action to break the wall of silence around the DES issues, as well as where the DES health concerns are being ignored.

Join us on flickr:

  1. Check out the DES Diethylstilbestrol Photostream and Map
  2. If you already have a flick account, add us as a contact.
  3. Email your photos to info@diethylstilbestrol.co.uk with a short description and title.

DES Diethylstilbestrol flick page was created and is administered by Diethylstilbestrol, Journal of a DES Daughter.

If you haven’t done it yet, you can also join us on facebook and/or twitter. Our facebook community is the perfect medium to share views, photographs and DES stories. Follow us on twitter and keep up to date with everything Journal of a DES Daughter is doing.

Help us break the wall of silence around the DES issues by joining these social networks and encouraging your friends to do the same.