DES Sons

What is a DES Son? Who are they?

DES Sons are all the men born between 1938 and 1978 who have been exposed in utero to the anti miscarriage drug and man-made estrogen Diethylstilbestrol (or DES in short) Diethylstilbestrol DES Google+ Page icon.

They live in the U.S.A., Canada, Australia, Europe and all corners of the world where the drug was prescribed decades ago during the pregnancy of their mother (also called DES Mothers).

DES Son image
Image © courtesy of DES activist and CNN iReporter KMFDallas

6 Replies to “DES Sons”

  1. I was born in the late 1940’s, the only child of a 36-year-old mother who was obsessed with her pregnancy. I don’t have the medical records but I fear that her possible use of DES just to be sure, resulted in penis reduction for me. Dad was normal. My sex drive and sperm count have been good. Is this a common side effect?

  2. Hi
    I am a DES son who has a DES sister. I am now 56 and i was born in the Netherlands.
    I have noticed how little information or support there is re. DES in the UK.
    At the moment I am looking for as much info as possible (in English, UK based) for the likely possibility I have to make my GP more aware as they dont quite seem to know DES daughters and sons.
    I have started to have health concerns and symptoms which I think are directly related to DES.
    Is there a DES screening tool available anywhere in the NHS? Are there any support groups in the UK?(I cant find any) I am trying to find out as much information as possible from the UK as this is where I have lived for nearly 30 years. This blog has already been very helpful to me! and would like to hear from people’s experiences, many thanks!

  3. Hi, I am a male born in 1956 and I have been experiencing and reporting gender dysphoria since I was a toddler. I’m wondering if and how I could find out if I was exposed to DES.

    1. Apart from questionning your family…

      Despite I’ve read in a study – epigenetics – that DES can modify 600+ genes, I’m not aware of a test that can determine DES exposure.
      That would be a good “university dissertation” for a keen scientist, researcher.

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