Thank you for your support, hope you all have a peaceful day!
Merry Christmas to all @DES_Journal of your DES Daughter website readers!
Image credit Khedara.
Merry Christmas to all Diethylstilbestrol @DES_Journal of a DES Daughter Readers!
DES and Endocrine Disruptor Chemicals Research Guides
Few years ago we started looking for DES images and videos, as mentioned on this gallery page.
With the years, the images have been arranged accordingly onto several Flickr albums.
Awesome Flickr Gallery:
fast, efficient and super easy plugin to create customisable photo galleries
Recently we found a WordPress plugin – demo version here – allowing to create multiple galleries with different parameters.
You’ll now be able to watch archived DES adverts, DES books, manufactured DES drugs and DES research guides directly on this website.
Here is an example – on this post – with DES and EDCs Research publications.
[FAG id=7278]
DiEthylStilbestrol DES Website New Design
With 2016 approaching, we thought it was time to be back publishing posts as well as time for few changes…
The “Evening rays” awesome graphic is by Douglas M. Paine, some rights reserved.You’ve been exposed to DES,
so what?
Fist, the header image. There are hundred of studies which prove that DES has an endless list of side-effects. Some posts such as My DES Daughter Journey – Doctors (03.2011), Wanted: DES Aware Doctors (04.2011) and A focus group study of DES daughters: implications for health care providers (2000 study) mentioned the DES-victims distrust of the medical profession. So, we wanted a header reminding the severity of the DES tragedy as well the uncertainty of the future for the DES-affected generations…
Fluid Design
and Responsive Images
Thank you theme Weaver for the years we spent together, from now on, we opted for the WordPress default theme for 2016: Twenty Sixteen.
Here are some of the theme new key features:
Introducing Twenty Sixteen
- With or without sidebar, your call.
- Overhang (the column) with a full-size image,wider than or equal to 840px.
- Use the excerpt section to add a catchy, short post intro showing under your main header / post title.
- Customize block quotes – put them left, right, where you like them!
- Display links to your social media profiles with perfectly sized icons in the footer with a custom menu.
- Add a call to action under your posts and pages, with 1 or 2 widgets displaying below your content.
- For more information, visit the WordPress theme page and demo version.
I can’t wait to get your opinion
Please tell me what you think, honestly, the good and bad…
Cheers
DES Diethylstilbestrol reviews
Your reviews matter to us – Thank you to all those who took the time to share their feedback about “Journal of a DES Daughter”.
A friend recently asked me a question that I often asked myself before my husband and I started on our “DES activism” journey: is it worth the time, efforts and dedication? The answer is simple: YES! Why? Just read these reviews / testimonials by people affected by the DES drug tragedy in one way or another. We are so grateful to all those who took the time to write a review about our website and we are thrilled that people find my “Journal of a DES Daughter” informative and useful. Your kind words of support keep us motivated. But before you start reading you may wonder what Alexa is…
Selection of Reviews left by DES-exposed individuals
DES – what we should know
I am mostly moved by the reality that there are people unaware of their exposure and the potential adverse health effects of diethylstilbestrol. Many don’t make the link between DES exposure and the health problems they are facing and sometimes even doctors don’t make that link either. Wouldn’t you want to know?
by Nate – Aug 07, 2012
My Mom took DES, what did it do to my Sister?
I try to visit from time to time because my Mom took DES to not lose my sister when she was pregnant. I didn’t even know it until my sister told me. I was only 7 when Mom was pregnant and as a child you just want your Mom to be okay and the baby to be alright. My sister has had many health issues, her lupus may be related to this, no one really knows, but she has it in remission right now. I am angry that the patients were given a drug that could cause so many problems for the children and their children. I learn more from this site each time I stop by. Keeping up with the latest research and the lawsuits is unbelievable hard, but this site does it so well and in easy to understand language. What we don’t know is if my Mom took DES with all of us? Each of us has health issues that are very unusual, and it makes me wonder because she did have two miscarriages before she had us. She passed from Dementia, so we will never know.
by Michelle – Jul 28, 2012
Wonderful informative Site
The site is very informative on the issue of a drug being administered to pregnant mothers which causes all sorts of problems. When I found out it was put in milk and being a Londoner I was forced to drink the milk as part of the school program, I am disgusted. This issue needs so much attention and unfortunately it receives so little.
by Barry – Jul 25, 2012
Did your Mother take DES? It could be causing you Problems now
and one way to find out is to check out this site. I had not known that my mother took DES when she was pregnant. She decided to discontinue it and had very limited exposure. Nevertheless, my jaw dropped when I read the list of things that are common to DES daughters, since I had experienced four or five of them. Great information!
by Susan – Oct 15, 2011
The Heartbreak of DES
As someone who has first hand experience with the side effects of DES, I found this blog to be a wealth of information about the drug and its use. The fact is has such lingering effects we may not even know about yet, is disturbing at best. The blog’s writer effectively combines medical research and data with her own personal journey as a DES daughter and mother, who is concerned about the yet unknown effects this drug may have on her own precious daughters and their children. The travesty against woman and men of mothers who were given this drug, as well as their future children, is something the writer communicates with passion and compassion.
by Paula – Sep 03, 2011
When I started writing my “Journal of a DES Daughter” a year and half ago I never thought I would be able to reach out to so many people – not only to victims of the DES drug scandal interested in DES health issues but also to people who had never heard about what is often referred to as the “Silent Thalidomide“. Thank you for your continued support. Your reviews mean a lot to us.
My DES Daughter Journey – Interview with June Stoyer
Recorded radio interview by The Organic View, with host, June Stoyer joined by DES Daughter 
Domino talking about her journey.
Part 1
Part 2
Part 3
Alternatively, click here to listen to the show, and/or download the iTunes podcast.
Host June Stoyer interviews the top CEO’s, experts, movers and shakers that affect the organic industry as well as our environment. The Organic View show explores all of the issues impacting the organic industry, proposed regulations, the environment, politics, living green and sustainability.
Read more about my DES Daughter journey : Introduction and Doctors.
1000 Thanks to our 1000 Facebook Fans !
June 21st 2012 marks a Milestone in our efforts to raise awareness of the DES drug scandal and tragedy! 1000 Fans of “Journal of a DES Daughter” have joined us on Facebook to support our work and further help spread the word about the devastating impacts of this drug. My heartfelt thanks goes out to each and everyone of you for your continued support and interest in the DES cause! Thank you :)
Please find a list of Facebook groups and pages providing updates about the Diethylstilbestrol related issues as well as support for DES victims.
- Association Réseau DES France victimes du Distilbène – page.
- DES: Society of Sons and Daughters (So Sad) – closed group.
- DES Action USA – page.
- DES (Diethylstilbestrol) Info – page.
- DES Tragedy: DES exposed welcome! – closed group.
- Diethylstilbestrol, Journal of a DES Daughter – page.
- Victimes du Distilbène® – closed group.
- WONDER DRUG – page.
Spread the Word
Thank you for sharing our page !
DES Sons
What is a DES Son? Who are they?
DES Sons are all the men born between 1938 and 1978 who have been exposed in utero to the anti miscarriage drug and man-made estrogen Diethylstilbestrol (or DES in short) .
They live in the U.S.A., Canada, Australia, Europe and all corners of the world where the drug was prescribed decades ago during the pregnancy of their mother (also called DES Mothers).
Image © courtesy of DES activist and CNN iReporter KMFDallas- Read inspiring life stories of DES Sons on Scoop.it.
- Read more about DES Sons health concerns and numbers.
- Read more about DES Sons studies on health issues and infertility.
- Listen to KWMR Radio Interview with Dr. Dana Beyer on the side effects of Diethylstilbestrol and its influence on gender identity.
- Read CNN iReporter KMFDallas post on DES effects on males.
- eMail Scott Kerlin to join DES Sons International Research Network.
DES Daughters
What is a DES Daughter? Who are they?
DES Daughters are all the women born between 1938 and 1978 who have been exposed in utero to the anti miscarriage drug and man-made estrogen Diethylstilbestrol (or DES in short) .
They live in the U.S.A., Canada, Australia, Europe and all corners of the world where the drug was prescribed decades ago during pregnancy.
- Meet some amazing DES activists on Pinterest pin board.
- Find Susan B.’s book “DES Daughters” and Stephanie’s book “Moi, Fille Distilbène” on Flickr.
- Watch Caitlin, Jackie and Susan H. interviews via our DES video page or via our YouTube Diethylstilboestrol channel.
- Read how my personal
DES journey started, the story about my battle with DES doctors in the UK and more posts about DES Daughters. - Read inspiring life stories of DES Daughters on Scoop.it.
- Follow DES Daughters Carol @DESAustraliaNSW, Caitlin @WONDERDRUGMOVIE, Fran @DESActionUSA, Domino @DES_Journal and Karen @DESInfo411 on Twitter.
DES Daughters during the MGH Boston 2011 DES Symposium – Andrea Goldstein, Caitlin McCarthy, Cheryl Roth.New Online Global DES Health History Survey
Calling all DES Mothers, Daughters and Sons!
The DES Health History Global Survey is our chance to be heard and make all of our health experience counts!Take part in the new DES Health History survey created by DES Action USA and open to all DES-exposed individuals worldwide.
The survey is designed to establish trends and identify health issues faced by women who took Diethylstilbestrol, their DES exposed children, and also their children (DES granddaughters and grandsons).
Data from the DES community on health conditions – beyond those already known – which appear more frequently in DES-exposed individuals than among unexposed populations is critically missing. This information is needed to share with researchers who can follow-up with further study.
My mum has recently been diagnosed with Hashimoto’s Thyroiditis, an autoimmune disease that affects the thyroid. Could it be associated with her exposure to Diethylstilbestrol back in the late 60’s? Is she the only woman who was prescribed the wonder drug DES during pregnancy to suffer from this health condition?
I suffer from anxiety and stress from worrying about what the future holds for my daughters and whether Diethylstilbestrol will affect their health and chances to give me and my husband grand children. Am I the only DES daughter out there who cries in secret when her little girl plays being a mum knowing that this synthetic hormone may one day prevent that imaginative play from becoming reality due to potential DES pregnancy complications?
The children of Marie-Odile Gobillard-Soyer, a French DES mother and researcher in molecular biology, both committed suicide. She started an association and in 2011 conducted a national study among children of French DES mothers which revealed a link between DES and mental illness issues in DES daughters and sons. Could this be a worldwide trend?
In October 2011, the alarming results of a study analyzing the risks of diethylstilbestrol related disorders among women whose mothers took the synthetic hormone during pregnancy, compared to others who weren’t exposed were published in the prestigious New England Journal of Medicine. But victims of this drug scandal wonder if other health conditions that are currently not associated with DES by the medical profession could in fact be the direct result of Diethylstilbestrol exposure. Hopefully the new global DES Health History Survey will answer these questions.
Since I started my Journal of a DES Daughter, I’ve read many sad testimonials and DES stories. What they all share in common is the incertitude for the future and the feeling that the DES drug scandal and its associated health issues are not enough acknowledged publicly and by the medical profession. The DES Health History Survey will provide DES Actions groups and DES activists with the data needed to push for more studies and support for DES victims.
Why is it important to know whether your health condition is associated with DES or not? First because DES victims have the right to KNOW and more importantly because PREVENTION of these conditions when you know you are at higher risk can save lives.
The deadline for the completion and return of this survey is JUNE 15th 2012.
The survey can be completed online or you can download the “DES Health History Questionnaire”.
Please share this information on your social networks, with your friend and family who may be interested in completing the survey. I can’t stress enough the importance to take part! This is our chance to be heard and make all of our health experience counts!
Five Scary and Shocking Facts about Diethylstilbestrol
1. As early as 1939, researchers had shown that DES Diethylstilbestrol could cause cancer and changes in the reproductive tracts of mice and rats, but drug companies ignored these results ; they also tested DES on pregnant women without consent.
DES did not lead to healthier babies, nor did it prevent miscarriages, according to research that began appearing in 19532. In 1953, a study of 2000 women at the University of Chicago showed that DES did not prevent miscarriage; on the contrary, it was associated with increases in premature labor and a higher rate of abortions.
3. Despite this study, the drug continued to be used. It wasn’t until 1971 that American drug companies were legally obliged to label DES “unsuitable for pregnant women”. The FDA did not ban the drug but issued a contraindication which means that the drug DES continued to be prescribed to pregnant women even after the link between a rare form of vaginal cancer in young women and prenatal exposure to DES was established.
4. A whole generation of new medical students and doctors don’t know about Diethylstilbestrol, yet a study published in 2011 confirmed lifetime risk of adverse health effect in DES daughters (the youngest are in their mid 30’s early 40’s). DES is one of those cases where the patients often know more about its effects than the doctors.
5. DES is a multi-generational tragedy. Research by the Netherlands Cancer Institute in 2002 suggests that hypospadias a misplaced opening of the penis occurred 20 times more frequently among third-generation sons. In laboratory studies of elderly third-generation DES-exposed mice born to DES daughter mice, an increased risk of uterine cancers, benign ovarian tumors and lymphomas were found. Third-generation male mice were shown to be at risk for certain reproductive tract tumors.
Are we going to ignore these results like we did in 1939?
Third-generation children, the offspring of DES daughters and DES sons, are just beginning to reach the age when relevant health problems can be studied. Funding for more research is critically needed to continue to look for evidence of reproductive abnormalities and cancers among third-generation DES women and men to ensure they receive appropriate follow-up care.