DES and Breast Cancer Risks
Are DES daughters at higher risk of Breast Cancer? What is the NHS approach in UK and what are the prevention measures?
DES Activist outside USA
Carol Devine, Founder and Coordinator of DES Action Australia-NSW, highlights the difficulties for a DES activist to access information outside USA.
DES, Guilt, Fear, and other Emotions
Review of the emotions including anger, anxiety, fear, frustration and guilt felt by most diethylstilbestrol DES victims.
French study reveals more damaging DES side effects
Recent study conducted by Marie-Odile Gobillard-Soyer, former director at the CNRS reveals a link between DES and mental illness issues
International Women’s Day
Attend Journal of a DES Daughter International Women’s Day event on Facebook. Celebrate the courage of women affected by diethylstilbestrol.
The FDA is Lying by Omission
M. Henderson (US FDA) and C. McCarthy (screenwriter) communication about the health benefits of limiting the use of DES in pregnancy
My DES Daughter Journey – Doctors
I have been exposed to DES but doctors needed more evidence to accept that diethylstilboestrol had contributed to my miscarriage
DES Pregnancy
While pregnancy is probably the most beautiful experience of a women’s life, a DES pregnancy is not. For DES daughters (women who have been exposed to DES or diethystilbestrol prenatally), it’s more often than not the most troublesome time. For some of us, getting pregnant is even impossible due to congenital uterine anomalies caused by …
Distilbène®
Diethylstilbestrol or DES was sold under many names including Distilbène®, Stilboestrol-Borne®, Benzestrol®, Chlorotrianisene®, Estrobene® and Estrosyn® to name just a few. Many companies manufactured and marketed this drug under more than 200 different brand names. Distilbène®, prescribed to my mum throughout her pregnancy, was manufactured by Ucépha and sold by UCB Pharma in France. DES was not only sold …
Contact
For support, please contact DES action groups. Here are the medical contacts in the UK for the DES-exposed. There are DES pages and groups you can join on Facebook and follow on Twitter. Should you wish to share your own DES experience, fill the form below. Sign Anonymous if you prefer your name NOT to be …