DES Daughters

What is a DES Daughter? Who are they?

DES Daughters are all the women born between 1938 and 1978 who have been exposed in utero to the anti miscarriage drug and man-made estrogen Diethylstilbestrol (or DES in short) Diethylstilbestrol DES Google+ Page icon.

They live in the U.S.A., Canada, Australia, Europe and all corners of the world where the drug was prescribed decades ago during pregnancy.

DES Daughters during a DES Symposium image
DES Daughters during the MGH Boston 2011 DES Symposium – Andrea Goldstein, Caitlin McCarthy, Cheryl Roth.

6 Replies to “DES Daughters”

  1. Just wanted to know if there is any research to date that connects DES to Trigeminal Neuralgia? I have this horrible disease along with others(chronic illnesses). I have endured many procedures and now considering MVD. Anything out there that connects the disease with the DES,

  2. Leslie, I have the same question. I am a DES daughter and have had fibromyalgia, chronic myofascial pain, and arthritis for 20 years. I recently was diagnosed with trigeminal neuralgia (!) as well and was wondering if it was connected and my search led to your post. I was reading about third generation effects and my daughter was diagnosed with an intramedullary astrocytoma (malignant tumor entwined in her spinal cord) when she was 18 months old. I wonder…..
    Hope there is someone out there who might have the answer.

    1. I’m a D.E.S daughter also. I have fibromyalgia, chronic myofascial pain, and arthritis since I can remember. I’m in chronic pain from head to toe. I had a hysterectomy when I was 25 and could never carry a baby to full term. I have had tumors and cyst throughout my body especially in my female organs. Just sayin, it is probably all connected to diethylstilbestrol. I was born in 1955.

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