“Diethylstilbestrol, Journal of a DES Daughter”!
What if France had followed the recommendations of the US Food and Drug Administration (FDA) for physicians to discontinue prescribing Diethylstilbestrol DES in pregnant women? I would most likely not be writing my DES Blog. My nickname is Domino, I am a DES Daughter born in France in 1971. Thirty years later, following a miscarriage, I was diagnosed with a septate and T-shape uterus also called DES daughter uterus. This malformation was caused by diethylstilbestrol, the drug that was prescribed not only to my Mum, but to millions of other women in North America, Europe and Australia to ironically prevent miscarriage and complications during their pregnancies. In 1971, diethylstilbestrol continued to be prescribed in France, under the name of Distilbène®, to expecting Mums despite a report published in the US by the New England Journal of Medicine citing health concerns for mothers and children. 10 years after the first consequence of my DES exposure, I’ve come to term with the fact that I am a DES daughter. I am finally able to put words to my suffering and anxiety for the future and health of my daughters. I’ve decided to speak out and share my personal DES journey.
Diethylstilbestrol “Journal of a DES Daughter” aims:
This website is not just my journal and my way of dealing with the impact DES exposure has had on my life and on my loved ones but a tool to share my experience and knowledge of diethylstilbestrol with other people, other DES daughters and DES sons around the world who are suffering from the devastating consequences of DES. I am writing this blog in the hope that it will:
- Provide general information about DES exposure and DES side effects / consequences
- Encourage women who think they may have been affected by DES exposure to seek advice and support from DES Action groups
- Raise awareness amongst the general public about Distilbène® and the many other brand names under which the drug diethylstilbestrol was sold
- Help share DES updates, news and advocacy outcomes from all over the world
- Compliment the work of DES Action groups by sharing my personal DES journey,
my DES pregnancy, and my feelings, emotions and views on this worldwide drug disaster
- And if nothing else, log my DES medical history for my daughters (DES 3rd generation) who hopefully will never have to use this information.
Diethylstilbestrol, Journal of a DES Daughter (also on facebook) doesn’t claim to provide accurate medical, scientific or professional information. As its title suggests, this is just my personal journal and the result of my findings about diethylstilbestrol. Should you need medical or professional advice and support please contact your local DES Action group.
I dedicate my DES journal to my Mum (DES mother), my daughters (DES third generation) and all the victims of DES exposure worldwide. Thanks go to my husband for creating my DES blog but most importantly for his continued support and for putting up with all the troubled years of my DES journey.
Diethylstilbestrol “Journal of a DES Daughter” – blog ground rules:
To participate on my blog by posting comments or sending messages, you agree to abide by the following ground rules:
This is a friendly forum based on mutual respect. If any comment seems to violate the spirit of this concept, they won’t be published. All comments are the opinions of their respective authors and do not necessarily reflect my view. I am not responsible for comments’ content, authenticity or accuracy.
Should you wish to share your own DES experience, please contact me and I will happily publish your story. I hope you enjoy reading my DES Daughter Journal and thank you for your interest in this worldwide drug scandal.