New Online Global DES Health History Survey
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Calling all DES Mothers, Daughters and Sons!

DES diethylstilbestrol health history 2012 survey image

The DES Health History Global Survey is our chance to be heard and make all of our health experience counts!

Take part in the new DES Health History survey created by DES Action USA and open to all DES-exposed individuals worldwide.

The survey is designed to establish trends and identify health issues faced by women who took Diethylstilbestrol, their DES exposed children, and also their children (DES granddaughters and grandsons).

Data from the DES community on health conditions – beyond those already known – which appear more frequently in DES-exposed individuals than among unexposed populations is critically missing. This information is needed to share with researchers who can follow-up with further study.

My mum has recently been diagnosed with Hashimoto’s Thyroiditis, an autoimmune disease that affects the thyroid. Could it be associated with her exposure to Diethylstilbestrol back in the late 60’s? Is she the only woman who was prescribed the wonder drug DES during pregnancy to suffer from this health condition?

I suffer from anxiety and stress from worrying about what the future holds for my daughters and whether Diethylstilbestrol will affect their health and chances to give me and my husband grand children. Am I the only DES daughter out there who cries in secret when her little girl plays being a mum knowing that this synthetic hormone may one day prevent that imaginative play from becoming reality due to potential DES pregnancy complications?

The children of Marie-Odile Gobillard-Soyer, a French DES mother and researcher in molecular biology, both committed suicide. She started an association and in 2011 conducted a national study among children of French DES mothers which revealed a link between DES and mental illness issues in DES daughters and sons.  Could this be a worldwide trend?

In October 2011, the alarming results of a study analyzing the risks of diethylstilbestrol related disorders among women whose mothers took the synthetic hormone during pregnancy, compared to others who weren’t exposed were published in the prestigious New England Journal of Medicine. But victims of this drug scandal wonder if other health conditions that are currently not associated with DES by the medical profession could in fact be the direct result of Diethylstilbestrol exposure. Hopefully the new global DES Health History Survey will answer these questions.

Since I started my Journal of a DES Daughter, I’ve read many sad testimonials and DES stories. What they all share in common is the incertitude for the future and the feeling that the DES drug scandal and its associated health issues are not enough acknowledged publicly and by the medical profession. The DES Health History Survey will provide DES Actions groups and DES activists with the data needed to push for more studies and support for DES victims.

Why is it important to know whether your health condition is associated with DES or not? First because DES victims have the right to KNOW and more importantly because PREVENTION of these conditions when you know you are at higher risk can save lives.

The deadline for the completion and return of this survey is JUNE 15th 2012.

Click HERE to take the survey. The survey can be completed online or you can download the “DES Health History Questionnaire“.

Please share this information on your social networks, with your friend and family who may be interested in completing the survey. I can’t stress enough the importance to take part! This is our chance to be heard and make all of our health experience counts!

About Dominique “DES Daughter” Le Metayer

Activist, blogger and social media addict committed to shedding light on a global health scandal and dedicated to raise DES awareness.
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One Response to New Online Global DES Health History Survey

  1. nora king says:

    I am thankful for your website. My mother died this year and I will now be able to unseal my birth records. When I began my search for answers to my autoimune issues in my thirties, she sealed her medical record of my birth. Over the years i have wondered what cocktail i was on when i came into the world, as i have always remembered a ripping narcotic ride onto terra firma. Thankfully, I much preferred my head once it cleared.

    My prenatal care was divided between Scottish Health Services and a clinic in los angeles. I was born in LA in 1953, two weeks before a premature birth at Good Samaritan. A nurse told me that DES, scopolomine and morphine were the most likely drugs to be in my system at the time of my birth.

    I have a son and two daughters and two grandsons and had many miscarriages.

    I have suffered from arthritis, osteoporosis and have classic small tumors i have lived with for years. At 59, it seems late when if i had put it together before I would have gladly participated in the great inquiry.

    Do you know who to talk to to access the UK side of my medical files?

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